Lived Experience in Cancer Care and Research
Patients and caregivers in the Patient and Family Engagement program provide valuable insights into the patient experience, aiming to improve it.
The program has expanded to match patient advocates with researchers, helping design more authentic and participant-friendly clinical trials and studies.
- Some patients become advocates due to positive experiences, such as early diagnosis and effective treatment.
- Others get involved after facing negative experiences, like misdiagnosis.
Brandelyn Bergstedt, director of Fred Hutch Cancer Center’s Patient Experience Program, became a patient advocate after a personal experience with misdiagnosis during pregnancy.
Patient engagement plays a crucial role in enhancing cancer care and research.
Author's summary: Patient engagement improves cancer care.More News
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